Hello
S.A.I. supporters.....Just wanted to check in and let you all know the
progress of Shanyna's Illness...Shanyna returned to Johns Hopkins 3
weeks ago to see what progress she had made...She and her mom were very
disappointed at the news she received from the doctors...They stated
that one of the many many Meds that Shanyna was taking to try and clear
up here skin had actually made her skin worse...After
being on it for 2 and a half years and It has only helped her face
.They also explained that she was becoming very dehydrated and (even
though she drinks a whole lot of water everyday) there is no oxygen
getting to her skin once again and without the oxygen her skin is
suffocating and it makes her body temperature rise high keeping her
very very hot all the time now...she is still in a lot of pain and now
sleeps most of the day away to avoid feeling the pain as much...They
also told her that she needed to return to Johns Hopkins in 30 days
because they will be setting up another sit in conference with about 75
doctors that will examine her from head to toe and then excuse her out
and start discussing her case amongst them all...They will then come up
with another solution and treatment plan to start her on again...Shanyna
cried as she heard the news and begin asking the doctors why she
couldn't get the laser surgery where they could kill her hair follicles
since they were already damaged badly so that she could get some relief
from the stems (nails)...They replied that that could not be an option
due to it being a form of light treatment which harmed her once
before...she then got frustrated and started scratching and making her
nerves very very bad....We have to keep close watch on her because any
little thing can trigger her nerves off and she will get depressed
really quick....she is already down and depressed about not having the
funds to make it on June 26...She doesn't want to ask for donations
anymore because she said that it makes her look as if she is begging and
bothering people....We have to understand where she is coming from with
this one..one minute being a independent person having everything an
adult is suppose to have and do...she had her own place...worked 2 jobs
and was in school full time to only get sick and loss it all....If that
wasn't bad enough her mother job did her wrong as well and added
additional stress to their situation. ..Her mother's job found out about
Shanyna being ill...so they did a fundraiser for Shanyna and raised
over 5 thousand dollars for her to go out of the states to get help else
where because Memphis hospital had no more sources to help her...once
Shanyna and her mom arrived in Baltimore and made it to Johns Hopkins
ER....within 10 minutes of being there they had admitted her in Critical
Care....when her mom called her job (that she had worked for over 16
years) and explained what was going on...her supervisor then asked her
how long would they be there and could she leave Shanyna in a state that
she knew nothing about by herself so that she could return to
work....they wanted her mom to pick between staying and helping her
child or leave Shanyna their alone with no family or anything and return
back to work...Her mother couldn't believe what she had been asked to
do but her mom picked without a doubt or hesitation to stay with her
child....they then fired her mom 2 days later sending her pink slip to
her Memphis home without anyone calling and telling her she had been let
go...She was so hurt that they let her go for picking her child knowing
that they need all the funds they could get...Also at this time Shanyna
was just a Vegetable....she couldn't do nothing for herself and they
wanted her mom to pick her job over her child...Sad thing about it when
they let her go they had only been in Baltimore 3 days...she then filled
for unemployment thinking that that would help them out with a little
income but she was denied due to the fact that they said it was
considered a voluntary leave....her mom then losted her home her truck
and her source of living all at 1 time....Shanyna cried day in and day
out because she felt it was her fault her mom lost everything but her
mom explained to her all the time that she did what was best for
Shanyna...she said a mother's love comes before any job....she said stop
worrying about what I lost for that was all material things that can be
replaced...She said do I look worried...I know the Lord above don't
make mistakes and that this was just a test of faith...She then grabbed
Shanyna's hand and asked her do she trust and believe...Shanyna looked
up into her mother's eyes filled with tears and said yes I believe...she
told her that life is not perfect and we have to make the best of
it...she said they told her Shanyna will never walk again but she's
walking on her own now...she couldn't eat and was losing so much weight
to fast but now she is back thick and juicy and eating very well...she
told Shanyna stop dwelling on the bad and focus on what's to come...so
with Shanyna's mom saying these things and staying positive believing in
the Lord...she explained that the Lord has Shanyna's best interest at
heart...lets come together and raise the funds that she really need to
make it to hospital in 3 weeks...Just click on the link below and follow
the steps....We really thank you so much for your time and love...God
Bless....Amen!!!!!!!
PLEASE VISIT ONE OF HER SITES TO HELP SHARE A BLESSING TO SAVE HER TODAY:
WWW.SAI-FOUNDATION.NET -MAIN WEBSITE (YOU CAN ALSO DONATE ON THIS SITE AS WELL)
WWW.GOFUNDME.COM/SHANYNA-ISOM -HER DIRECT DONATION WEBPAGE
PLEASE VISIT ONE OF HER SITES TO HELP SHARE A BLESSING TO SAVE HER TODAY:
WWW.SAI-FOUNDATION.NET -MAIN WEBSITE (YOU CAN ALSO DONATE ON THIS SITE AS WELL)
WWW.GOFUNDME.COM/SHANYNA-ISOM -HER DIRECT DONATION WEBPAGE
I recommend you always watch EMMANUEL TV the God that healeth is alive
ReplyDeleteHi, I saw a video recently that focused on your story and the video argured for 70% of it about health insurance and it's issues. I was expecting to find a crowdfunding link somewhere to help with your financial burden, but was surprised to barely find anything except this website and was surprised that even this was so hard to find. I'd just like to suggest looking into a crowdfunding website to get some help with the cost (which was stated to be around a 250K) as I honestly think it would be an insanely big help in finding the money/relieving some stress from this if it is still continuing
ReplyDeleteDear Shanya,
ReplyDeleteMy name is Katalin and I live in Sweden. I have just seen your story on National Geographic. Your story reminds me a lot about what I went through at your age, however not as severe but I was very, very sick.
My sickness also started with asthma, just like that, from one day to another. Before that I was the most healthy person on earth. The doctors started to give me all kinds of medecins and the more I took the worse it got and I got more and more sick and in the end also depressed. In the end my body was so poisened by all medecins that my body was covered with eczema. On my head, I couldn't see my hair since the head was covered with thick eczema and it was bleeding. There was no doctor that could help me and their only solutions were to give me more heavy medecines, which made me more sick and giving me different kind of illnesses, that I never had before. After being sick for two years, I made the decision to try something completely different than what ordinary health care could offer. I was desperate. I went to a health spa for a total detox and fasted with ecological fruit and vegetable juices, soups and drinking herbal tea. I did that for ten days!!! and went home completely cured!!! My body was so poisened by all medicines so there was no immune defence left in my body. All bad stuff that left my body during the detox.
Back home I met a woman who does blood test, showing your mineral and vitamin status and my body was lacking all kinds of minerals and vitamins, causing my intial asthma and body weakness. These tests are not the same as the tests done in a hospital. These tests are showing much more detailed results, which are not seen in hospital tests, since their test range are not as wide as these tests are. As a result of the test results I was prescribed minerals and vitamins which made my levels healthy again.
This was about 25 years and I have been feeling great since then.
You have to remember that there is no doctor that believes in what I did, with the detox and the blood tests but me being healthy again proves it all. We do need doctors but I do believe in using homeopathic solutions also. It has helped me.
In case you need to ask me questions about this, don't hesitate to contact me. katalin.h.61@gmail.com.
Kind regards, Katalin
I really hope you will indulge me reading this message through. I read about your condition and it sounds familiar to me. It sounds like an obscure disease that effects maybe five people in the entire world I do not remember the name but the person who suffers from it is known as the wooden man and has a series of extreme wart growth encompassing his hands and feet. Have your doctors looked into this? I know it is not the same but could it be in a similar class? Again I hope you will indulge me a response thank you for your time and have a good day.
ReplyDeleteScott Strozier
email: sastrozier@comcast.net
poor thing I hope she finds a cure. me and my friend are trying to help.
ReplyDelete